OUR

RESEARCH

ON THE WAY

TO MOVE FORWARD

With the resources we get, we want to develop the following strategies: on the one hand, to support worldwide research on our disease and, on the other, to promote research in gene therapy.

HOW TO HELP?

··· Goals ···

Promote applied research in gene therapy for vhl.

Due to various efforts, coincidences and circumstances, this objective is materialized through interdisciplinary and inter-institutional work with a variety of Basque agents.

Help fund priority VHL research being done in various worldwide countries.

As a secondary and smaller action, we will facilitate our affected members to contribute to the expansion of VHL Data Bank (Patient Natural History Study) that collects historical details of people with VHL worldwide.

    ··· Gene therapy: a group and a project ···

      An interdisciplinary and inter-institutional group has been created to promote a gene therapy project applied to VHL between different research centers and medical centers.

      The group has met periodically since 2019 and we are fortunate to have in the group important exponents from Basque institutions and from the field of research. This is the composition of the group:

      • Edurne Berra. Researcher at the Biogune Biomedical Research Center, expert in HIF factor (Bilbao).
      • Gloria Gonzalez Aseguinolaza. Researcher and Director of the Gene Therapy Program of the CIMA-Universidad de Navarra Research Center.
      • Jesus Bañales. Reresearcher of Biodonostia Biomedical Research Center (Donostia-San Sebastian).
      • Matxus Perugorria. Researcher of Biodonostia Biomedical Research Center (Donostia-San Sebastian).
      • Ander Urrutikoetxea. General Director of the Onkologikoa Hospital in Gipuzkoa.
      • Ander Aizpurua. General Director of the Kutxa Banking Foundation.
      • Javier García Cogorro. General Director of Viralgen Company of viral vectors for gene therapy (Bayer group). Ocasional colaborator of the group.
      • Amaia Antero and Jon Sarasua, board members of Sendabide VHL aliance.

      After a few years’ work, in 2020 a project with four stages has been formulated. An international Advisory Board will be created shortly for the project, and we are starting in 2021 with the first phases of applied gene therapy research for VHL.